There are many different manifestations and types of Ehlers-Danlos Syndrome (EDS). The commonality between them all is a genetic fault within the a specific type of collagen gene leading to weakened tissues everywhere this type of collagen is found in the body.
There are many scientifically based and reliable resources on our national foundation's website: _http://ehlers-danlos.com/.
If you would like to learn more about Chiari Malformation and Craniocervical Instability please go to http://csfinfo.org/. Dr. Fraser Henderson and others have lectures available for watching on this website.
2 Physicians from Cincinnati Children's Hospital help a video conference for individuals to ask questions. It was very informational for those with EDS and healthcare providers. So whether you are struggling for answers for you, your child, or tips for your healthcare provider on how to treat your EDS, this is worth your time to watch! There focus was on pain management in the EDS pediatric population, but much of the information is applicable to adults as well! Enjoy!!! Just follow the web address below...
Here are some articles that we have found interesting. We try to only post peer reviewed articles that are reliable and valid unless there is a link to an interesting news article or event.
Please feel free to contact us with other interesting articles you have found.
Click on the buttons below to have access to the articles we have found.
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