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ALabama EDSers is a nonprofit organization based out of Birmingham, AL.. We support individuals living with Ehlers-Danlos Syndrome (EDS) and their families through support, providing education, and reveiwing the latest research. EDS is a connective tissue disorder which leaves individuals with weakened collagen throughout their body. This can be very disabling and really effect the quality of life for individuals with EDS.
Alabama EDSers is a supporting nonprofit organization for our national founation, Ehlers-Danlos National Foundation (EDNF). In addition to building our organization for the families here in the South, we also strive to help support important research through EDNF. There is still much research to be completed to help improve the quality of life for individuals with EDS. The genetic testing is still not available for the most common form of EDS.
In the southern United States there is a lack of awareness leading to a diagnosis later on into adulthood in most cases. With improved awareness and knowledge, individuals will be able to get a diagnosis sooner and hopefully prevent some of the many complications that may occur.
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